Let Me Tell You a Story - Part 4
Not again… my heart raced as I braced myself on the counter. I wiggled my hand, pinched it, flexed it. Still there…but not…
I called my husband over to check my face. Does one side look off? It doesn’t feel right. Ask me to say ‘tennis ball!’
All normal, at least on the outside.
The vision returned and the migraine came in full force. Just finish the pizza, thank the neighbor for the eggs. Then sit in the dark on the couch.
A couple days later I talked with my doctor on the phone.
What is the cause of this? It wasn’t a stroke – what was it?
“Cut gluten completely, and immediately.”
Are you serious? Gluten can do this?
“It’s inflaming your brain; cut it from your diet and we will go from there.”
I did, and the healing began. After a week or so without any trace of gluten, I was feeling amazingly better. My husband worked on finishing up the glutenous foods and the kids and I adjusted our diets. No more tummy aches, no more pain in my oldest’s knee. It was fantastic.
I adjusted my baking routine; I had begun selling baked goods, planning to continue as a means of fundraising for our adoption. I found that there’s a significant gluten-free crowd, so I started catering to them.
Not long after that I had blood work done that revealed more: leaky gut, intolerances to gluten, dairy, eggs, and a handful of other random foods.
Great. How will I do this? Now I’m basically a gluten-free, meat-eating vegan? HA!
My mind bounced between determination and defeat.
How would I keep baking to sell? I could keep up with the gluten free goods, since the rest of my family could still eat them. Batches had to be dual-purpose: keep some for my family, make extra to sell. I could make smaller batches of things for myself. Problem solved…once I could get the hang of it.
Wait, what is this? My left side…again…no…
It had been over two months since making huge diet changes. Two months without any gluten, which I now knew inflamed my brain. Yet there I was, symptoms showing up again. They were a fraction of what they used to be, but they were back.
I panicked.
Is it MS? Is it Lyme? What is wrong with me?!
Year after year I was told it was all in my head. All these random symptoms - they didn’t make sense, so it must just be in my head. Or if that wasn’t satisfactory – anxiety. Surely anxiety.
I searched and searched, read and read. Cried and fought fear, again.
Fatigue. Brain fog. I assumed these were part of motherhood – but I was sleeping enough. Why was I still waking up exhausted? Why could I not formulate the words I wanted to say, when they were right there? Why couldn’t I think of things, or do something without being distracted? Come to think of it, these issues were around long before my kids were.
Heart palpitations. Joint pain. Neck pain. Migraines. Shortness of breath. Surely, anxiety. Yet why did my wrist seize up when I tightened the carseat strap? Why could I walk miles one day, and the next get winded carrying laundry up the stairs? Why, in high school, could I track with all that my coaches asked and then later look like I had no idea what I was doing? Surely, anxiety?
I walked into my doctor’s office and told her to prove me wrong.
“It’s Lyme,” I said. “It all makes sense.”
It’s Lyme, she was certain. She’d seen enough of this to recognize it. We did a blood test, she prescribed me an intense medication, and we talked about getting my life back.
How did I get here?
I went out to the car and sat, relieved to have a prospective answer. Relieved yet terrified. People die of this.
My husband found out he had a week off of work after being exposed to covid. I filled the prescription, fully intending to start while he was home and I’d have help.
I couldn’t do it.
The test results took longer than expected. But Josh’s one week off turned into two and I thanked God. It had become a sweet time together, and we got into a rhythm. Finally the results came – CDC negative, but based on bands in my blood it was very positive. Go figure.
Now, surely anxiety.
I cut the tablet into four and took one piece before I could talk myself out of it.
I thought back over the last few months. I had prayed in desperation for a doctor who would be able to hear me out and provide help. He answered that prayer, and He orchestrated the order of events in just the right way. This particular doctor is a Lyme specialist, which I initially shrugged at - but He knew. We got my diet under control, allowing my body to start healing. And He allowed me to have a solid month+ of that before uncovering the Lyme disease I’ve had for over a decade.
All the pieces started to come together, and so did the questions.
Where does this leave us with adoption? My diet is even more restricted on this medication, I can’t even touch some of the baking ingredients now - how can I fundraise? Can I even fundraise at all if I’m on the couch, killing this bacteria? How will we be able to get through my treatment? It’s supposed to take a year or two…or more…Lord, please let it be effective. Please, please heal me.
…to be continued, once more…